Why ASG Was Founded
After seven years without any contact with another family whose son was also diagnosed with Anorchidism, I found four other families within the space of eighteen months. All these families felt isolated, hurt and also felt a sense of guilt.
With this in mind I set up a support group so that families, spread across the country and the world, can keep in touch with each other by newsletter and possibly a yearly meeting. I hope that then they will then feel that they are no longer alone.
Anorchidism Support Group Founder, 1995
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ASG reached a wonderful milestone on 7th July 2005, as our group had been founded for 10 years.
During this 10 year period we have been contacted by over 100 family's whose sons were diagnosed with Anorchia from around the world, and this number is steadily rising, the parents of children who were diagnosed with Anorchia (Vanishing Testes Syndrome, Testicular Regression Syndrome, etc), had the same questions, worries and concerns as did the first family that contacted us here at ASG. When contacting us, we have been able to help answer their questions, from not only in regards to information about Anorchia but also from first hand experience.
Anorchidism Support Group Founder, 2005
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ASG will reach it's 15th year milestone on 7th July 2010
Another 5 years have now passed, and as I stated in 1995 and 2005, that when parents are faced with the news of their sons condition they still have the same questions and concerns, and need someone to contact who knows how they feel and can answer their questions, and with this in mind we are continuing to keep the Anorchidism Support Group here for when parents need to contact us.
Anorchidism Support Group Founder, 2010